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THIS AUGUST - MOVE FOR THOSE WHO CAN'T

This August take the challenge to move for those that can’t, while honouring baby Bell and raising awareness for Spinal Muscular Atrophy (SMA) and acknowledge infant loss, miscarriage and still births. Just 2 months ago Bella was diagnosed with SMA zero, Move for Bella and moving for those who can’t! Lets find more appreciation and gratitude in life.

Below are two events to get involved with!

MOVE 4 BELLA
SMA AWARENESS MONTH

Move your body each day for the month of August. Pick your choice of movement with an option to continue to raise funds for Move 4 Bella campaign. You will earn points based on the duration of movement you undertake during the month of august. Gain access to free Instagram workouts to help keep you motivated at home.

RIDEATHON
12 RIDEATHON
Keep the peddles spinning for 12 hours. Can be an individual or teams event with an option for companies to sponsor a team. Customise the number of people in your tram and the duration you would like to cycle. Please note this is located in Ballarat, VIC, however there could be an option to join in virtually.


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ABOUT BELLA

Bella was born 28 April 2021 and was thought to be healthy at birth until 24 hours after delivery she had limited movement in her arms and legs. We were transferred to Monash Children's Hospital and painstakingly watched Bella fight to live, enduring test after test. Fifteen days later her diagnoses returned with SMA0, no treatment, no cure and terminal.

 

Because Bella’s nervous system had started to degenerate in utero, her condition was too severe and too late to treat. On 18th of May 2021, 20 days old Bella passed away in her mum's arms with her dad, brothers, and sister with her. She is just perfect in every way but was missing a gene SMN1 that caused SMA.

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WE NEED YOUR HELP

VICTORIA NEEDS TO OFFER TESTING FOR SMA,

Please help us by signing our Petition to get SMA testing on Victorian NEW BORN HEEL PRICK TEST.